Nurse’s Roles in Patient-Family Decision Making for Palliative Patients in Indonesia and Malaysia

Authors

  • Madihah Binti Abdullah Master of Nursing, Postgraduate Program, Universitas Muhammadiyah Yogyakarta, Bantul, Indonesia
  • Titih Huriah Master of Nursing, Postgraduate Program, Universitas Muhammadiyah Yogyakarta, Bantul, Indonesia
  • Arianti Arianti School of Nursing, Faculty of Medicine and Health Sciences, Universitas Muhammadiyah Yogyakarta, Bantul, Indonesia
  • Rosnani Binti Sarkasi Kulliyah of Nursing, International Islamic University Malaysia, Selangor, Malaysia

DOI:

https://doi.org/10.3889/oamjms.2021.5594

Keywords:

Nurses roles, Decision making, Palliative care, Indonesia, Malaysia

Abstract

BACKGROUND: The limited palliative care services can affect the late in palliative care management, such as late in decision making. Decision making is one of the crucial processes that every patient with life-threatening health life-limiting illness needs to overcome. Nurses can be the third party between the patients and physicians in helping them with decision making.

AIM: The aim of this study was to explore the differences perspectives of palliative care decision making for palliative patients and families in Indonesia and Malaysia.

METHODOLOGY: The study design used qualitative method with the phenomenology approach. The sample size of this study was 12 participants from two different study settings. They were three palliative nurses and three physicians from each country, selected by purposive sampling. The study was carried out at PKU Muhammadiyah Yogyakarta Hospital and Tuanku Fauziah Hospital Kangar, Perlis, Malaysia. Data collection used in-depth interview. The interpretative phenomenology analysis was used to analyze the data.

RESULTS: There were differences in the perspectives of palliative care services in Indonesia and Malaysia based on the culture form each of the countries. Nurses played a supportive role in ensuring that the care delivered to the patients and families were effective and efficient. Lack of staff was one of the challenges for Indonesia and Malaysia palliative care services need to face.

CONCLUSION: Three themes emerged from the collected data; there were views on palliative care, nurses’ supportive roles, and limited resources. To encounter the challenges and difficulties that interrupt the care delivery to the patients, nurses need to improve knowledge about palliative and their skills.

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References

World Health Organization. Noncommunicable Disease. Geneva: World Health Organization; 2018. Available from: https:// www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases. [Last accessed on 2020 Nov 04].

Abajobir AA, Abbafati C, Abbas KM, Abd-Allah F, Abera SF, Aboyans V, et al. Global, regional, and national age-sex specific mortality for 264 causes of death, 1980-2016: A systematic analysis for the global burden of disease study 2016. Lancet. 2017;390(10100):1151-210. PMid:28919116

Connor SR, Bermedo MC. Global Atlas of Palliative Care at the End of Life. Geneva: World Health Organization; 2014.

Ministry of Health. Annual Report Ministry of Health 2011. Saudi Arabia: Ministry of Health; 2011. p. 351. https://doi.org/10.21474/ijar01/2586

World Health Organization. Definition of Palliative Care. Geneva: World Health Organization; 2015. Available from: http://www. who.int/cancer/palliative/definition/en. [Last accessed on 2020 Jan 14]

Budijanto D, Hardhana B, Yudianto M, Soenardi T. Profil Kesehatan Indonesia 2016. Kementerian Kesehatan Republik Indonesia; 2017. Available from: http://www.depkes.go.id/resources/ download/pusdatin/lain-lain/datadaninformasikesehatan profil kesehatan indonesia 2016-smaller size-web.pdf. https://doi.org/10.31219/osf.io/hwxsa. [Last accessed on 2020 Jun 04].

Lim R. ED02.04 palliative care in South-East Asia. J Thorac Oncol. 2017;12(1):S24.

Docherty SL, Thaxton C, Allison C, Barfield RC, Tamburro RF. The nursing Dimension of providing palliative care to children and Adolescents with cancer. Clin Med Insights Pediatr. 2012;6:75-88. https://doi.org/10.4137/cmped.s8208 PMid:23641169

Visser M, Deliens L, Houttekier D. Physician-related barriers to communication and patient-and family-centred decision-making towards the end of life in intensive care: A systematic review. Crit Care. 2014;18(6):604. https://doi.org/10.1186/s13054-014-0604-z PMid:25403291

McDonald J, Swami N, Hannon B, Lo C, Pope A, Oza A, et al. Impact of early palliative care on caregivers of patients with advanced cancer: Cluster randomised trial. Ann Oncol. 2015;1(416):163-8. https://doi.org/10.1093/annonc/mdw438 PMid:27687308

Zimmermann C, Swami N, Krzyzanowska M, Hannon B, Leighl N, Oza A, et al. Early palliative care for patients with advanced cancer: A cluster-randomised controlled trial. Lancet. 2014;383(9930):1721-30. https://doi.org/10.1016/s0140-6736(13)62416-2 PMid:24559581

Patel K, Masi D. Palliative care in the era of health care reform. Clin Geriatr Med. 2015;31(2);265-70. PMid:25920061

Attia AK, Abd-Elaziz WW, Kandeel NA. Critical care nurses’ perception of barriers and supportive behaviors in end-of-life care. Am J Hosp Palliat Med. 2013;30(3):297-304. https://doi.org/10.1177/1049909112450067 PMid:22743231

Gramling R, Sanders M, Ladwig S, Norton SA, Epstein R, Alexander SC. Goal communication in palliative care decision-making consultations. J Pain Symptom Manag. 2015;50(5):701- 6. https://doi.org/10.1016/j.jpainsymman.2015.05.007 PMid:26025274

Caprio AJ. Palliative care: Renaming as supportive care and integration into comprehensive cancer care. CMAJ. 2016;188(10):711-2. https://doi.org/10.1503/cmaj.160206 PMid:27091796

Adams JA, Anderson RA, Docherty SL, Tulsky JA, Steinhauser KE, Bailey DE. Nursing strategies to support family members of ICU patients at high risk of dying. Heart Lung. 2014;43(5):406- 15. https://doi.org/10.1016/j.hrtlng.2014.02.001 PMid:24655938

Broom A, Kirby E, Good P, Wootton J, Yates P, Hardy J. Negotiating futility, managing emotions. Qual Health Res. 2015;25(3):299- 309. https://doi.org/10.1177/1049732314553123 PMid:25246331

Kirby E, Broom A, Good P. The role and significance of nurses in managing transitions to palliative care: A qualitative study. BMJ Open. 2014;4(9):e006026. https://doi.org/10.1136/bmjopen-2014-006026 PMid:25270859

Beng TS, Chin LE, Guan NC, Ann YH, Wu C, Kuan WS, et al. The experiences of well-being of palliative care patients in Malaysia: A thematic analysis. Am J Hosp Palliat Med. 2015;32(5):490- 503. https://doi.org/10.1177/1049909114523829 PMid:24574364

Effendy C, Vissers K, Tejawinata S, Vernooij-Dassen M, Engels Y. Dealing with symptoms and issues of hospitalized patients with cancer in Indonesia: The role of families, nurses, and physicians. Pain Pract. 2015;15(5):441-6. https://doi.org/10.1111/papr.12203 PMid:24799294

Ruland CM, Moore SM. Theory construction based on standards of care: A proposed theory of the peaceful end of life. Nurs Outlook. 1998;46(4):169-75. https://doi.org/10.1016/s0029-6554(98)90069-0 PMid:9739534

Schroeder K, Lorenz K. Nursing and the future of palliative care. Asia Pac J Oncol Nurs. 2018;5:4-8. PMid:29379825

Leslie JL, Lonneman W. Promoting trust in the registered nurse patient relationship. Home Healthc Now. 2016;34(1):38-42. https://doi.org/10.1097/nhh.0000000000000322 PMid:26645843

Abu-Ghori IK, Bodrick MM, Hussain R, Rassool GH. Nurses involvement in end-of-life care of patients after a do not resuscitate decision on general medical units in Saudi Arabia. Intens Crit Care Nurs. 2016;33:21-9. https://doi.org/10.1016/j.iccn.2015.10.002 PMid:26685090

Kusi-Appiah E, Dahlke S, Stahlke S. Nursing care providers’ perceptions on their role contributions in patient care: An integrative review. J Clin Nurs. 2018;27(21-22):3830-45. https://doi.org/10.1111/jocn.14534 PMid:29777552

Donelan K, Chang Y, Abebe JB, Spetz J, Auerbach DI, Norman L, et al. Care management for older adults: The roles of nurses, social workers, and physicians. Health Affairs. 2019;38(6):941- 9. https://doi.org/10.1377/hlthaff.2019.00030 PMid:31158015

Kalocsai C, Amaral A, Piquette D, Walter G, Dev SP, Taylor P, et al. It’s better to have three brains working instead of one: A qualitative study of building therapeutic alliance with family members of critically ill patients. BMC Health Serv Res. 2018;18(1):533. https://doi.org/10.1186/s12913-018-3341-1 PMid:29986722

Pecanac K, King B. Nurse family communication during and after family meetings in the intensive care unit. J Nurs Scholarsh. 2019;51(2):129-37. https://doi.org/10.1111/jnu.12459 PMid:30697910

Odachi R, Tamaki T, Ito M, Okita T, Kitamura Y, Sobue T. Nurses’ experiences of end-of-life care in long-term-care hospitals in japan: balancing improving the quality of life and sustaining the lives of patients dying at hospitals. Asian Nurs Res. 2017;11(3):207-215. https://doi.org/10.1016/j.anr.2017.08.004

Gerber L. Understanding the nurse’s role as a patient advocate. New Horizon. 2018;48(4):55-8. PMid:29561371

Nsiah C, Siakwa M, Ninnoni JP. Registered nurses’ description of patient advocacy in the clinical setting. Nursing Open. 2019;6(3):1124-32. https://doi.org/10.1002/nop2.307 PMid:31367438

Wai J, Tse K, Shuk M, Hung Y, Mei S, Pang C. End of life care in Hongkong. J Emerg Nurs. 2016;42(3):224-32. PMid:27033338

Siedlecki SL, Hixson ED. Relationships between nurses and physicians matter. Online J Issues Nurs. 2015;20(3):6. PMid:26882515

Elsous A, Radwan M, Mohsen S. Nurses and physicians attitudes toward nurse-physician collaboration: A survey from gaza strip, palestine. Nurs Res Pract. 2017;2017:7406278. https://doi.org/10.1155/2017/7406278 PMid:28326194

Henkin S, Chon TY, Christopherson ML, Halvorsen AJ, Worden LM, Ratelle JT. Improving nurse-physician teamwork through interprofessional bedside rounding. J Multidiscip Healthc. 2016;9:201-5. https://doi.org/10.2147/jmdh.s106644 PMid:27194915

Amudha P, Hamidah H, Annamma K, Ananth N. Effective communication between nurses and doctors: Barriers as perceived by nurses. J Nurs Care. 2018;7:3. https://doi.org/10.4172/2167-1168.1000455.

Wang YY, Wan QQ, Lin F, Zhou WJ, Shang SM. Interventions to improve communication between nurses and physicians in the intensive care unit: An integrative literature review. Int J Nurs Sci. 2018;5(1):81-8. https://doi.org/10.1016/j.ijnss.2017.09.007

Cipriano PF. The nation’s 3.4 million registered nurses a force for health. MHealth. 2016;2:9. https://doi.org/10.21037/mhealth.2016.03.04 PMid:28293587

Kurhila S, Lehtimaja I. Dealing with numbers: Nurses informing doctors and patients about test results. Discourse Stud. 2019;21(2):180-98. https://doi.org/10.1177/1461445618802662

Caronia L, Saglietti M, Chieregato A. Challenging the interprofessional epistemic boundaries: The practices of informing in nurse-physician interaction. Soc Sci Med. 2020;246:112732. https://doi.org/10.1016/j.socscimed.2019.112732

Watson DJ. The role of the nurse coordinator in the enhanced recovery after surgery program. Nursing. 2017;47(9):13-7. https://doi.org/10.1097/01.nurse.0000522018.00182.c7 PMid:28834927

Kuven BM, Giske T. Interaction between nurses and doctors is important for the nutritional status of nursing home patients. Fagfellevurdert Res. 2017;2017:64510. https://doi.org/10.4220/sykepleienf.2017.64510en

McAndrew NS. Nurses and physicians bring different perspectives to end-of-life decisions in intensive care units. Evid Based Nurs. 2018;21(3):85. https://doi.org/10.1136/ eb-2018-102902 PMid:29735723

Fukada M. CNCSS, clinical nursing competence self-assess-ment scale nursing competency: Definition, structure and development. Yonago Acta Medica. 2018;61:1-7. doi:10.4172/2167- 1168.1000455. https://doi.org/10.33160/yam.2018.03.001

Karami A, Farokhzadian J, Foroughameri G. Nurses’ professional competency and organizational commitment: Is it important for human resource management? 2017;12(11):e0187863. https://doi.org/10.1371/journal.pone.0187863 PMid:29117271

Langins M, Borgermans L. Strengthening a competent health workforce for the provision of coordinated/ integrated health services. Int J Integr Care. 2016;16(6):A231. https://doi. org/10.5334/ijic.2779

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Published

2021-02-20

How to Cite

1.
Abdullah MB, Huriah T, Arianti A, Sarkasi RB. Nurse’s Roles in Patient-Family Decision Making for Palliative Patients in Indonesia and Malaysia. Open Access Maced J Med Sci [Internet]. 2021 Feb. 20 [cited 2021 May 9];9(T4):6-17. Available from: https://oamjms.eu/index.php/mjms/article/view/5594