Life Experiences in Parenting: The Perspective of Women with HIV-AIDS
Keywords:experience, childcare, HIV-AIDS, mother’s role, parenting
BACKGROUND: The role of mother with HIV/AIDS in caring for their children has its own complexities. The mother plays a role in taking care of the family as well as being the caregiver for her children. Mothers with HIV-AIDS need to take care of themselves and their children who are either infected or not. Mothers can do multiple roles if their partner leaves them.
AIM: The purpose of this study was to determine the life experiences of mothers with HIV-AIDS in childcare.
METHODS: A phenomenological study was chosen as a design to explore the phenomenon of mothers with HIV-AIDS in parenting their children using in-depth interviews. Participants were drawn based on a purposive sample of seven people. The participant’s considerations were the wife who was diagnosed with HIV-AIDS positive and was registered as a patient managed by the HIV-AIDS program at the Serang City Health Center; the participants received ARV treatment, good general condition, able to communicate well, and cooperatively. The data analysis used was Colaizzi.
RESULTS: The results of the study generate four new themes: Expectation of negative status of the loved ones, lamentations of wives with People Living With HIV/AIDS (PLWHA) status, management of sick child care and HIV testing, tendencies of authoritarian, and permissive parenting in children.
CONCLUSION: Therefore, it is important to increase peer group counseling on the process of disease acceptance, management of sick children management, and implementation of HIV testing that can be accessed by family members of PLWHA.
Bare S. Brunner and Sddarth’s Textbook of Medical-surgical Nursing. 12th ed. Alphen aan den Rijn: Wolters Kluwer; 2010.
Gillard MA, Roark F. Support for basic psychological needs in the context of HIV disclosure for older you children and youth. Serv Rev. 2013;35:102-11. https://doi.org/10.1016/j.childyouth.2012.10.021
Waluh NR. Mother Living with HIV Disease : A Grounded Theory. Doctoral Dessertation from Proquest LLC. UMI 330192; 2008.
Nyamathi A, Ekstrand M, Zolt-Gilburne J, Ginguly K, Sinha S, Ramakrishnan P. Correlates of stigma among rural Indian women living with HIV/AIDS. AIDS and behavior correlates of stigma among Rural Indian women living with HIV/AIDS. AIDS and behavior. AIDS Vehavior. 2013;17(1):329-39. https://doi.org/10.1007/s10461-011-0041-9 PMid:21915715
Kohan N, Beigi M. HIV positive women’s living experiences. IJNMR 2007;13(4):155-6.
Majumdar B. An exploration of socioeconomic, spiritual, and family support among HIV-positive women in India. J Assoc Nurses AIDS Care. 2004;15(3):37-46. https://doi.org/10.1177/1055329003261967 PMid:15165374
Haroen WC. Quality of life in women with HIV/AIDS and women with partner has HIV/AIDS in West Java, Indonesia. Univ Indones. 2008;10(18):1-13.
Serang KP. Laporan Quartal 15 GF (Global Found). Fase 2. Kabupaten Serang; 2014.
Thomas S, Nyamathi B, Swaminathan A. Impact of HIV/AIDS on mothers in Southern India: A qualitative study. AIDS Behav. 2009;13:989-96. https://doi.org/10.1007/s10461-008-9478-x
Centers for Disease Control and Prevention. HIV-AIDS among Women Resources Women Topics. Atlanta, Georgia: Centers for Disease Control and Prevention; 2015.
Ernawati, E., Rahayu, S.Y. and Kurniawan, T., 2019. Life Experiences of Women (Housewives) Diagnosed Hiv–Aids in Serang. KnE Life Sciences, pp.272-283.
Karina H. Memahami Pola Asuh Pada Ibu yang Terinfeksi Human Immunodeficiency Virus; 2009.
Polit DF, Polit-O’Hara S, Hungler BP. Essentials of Nursing Research: Methods, Apraisal, and Utilizations. 6th ed. Philadelphia, PA: Lippincot, William and Wilkins; 2010.
Afiyanti. Metodologi Penelitian Kualitatif dalam Riset Keperawatan. Jakarta: PT Raja Grafindo Persada; 2014.
Rokhmah, D., 2015. Pola asuh dan pembentukan perilaku seksual berisiko terhadap HIV/AIDS pada waria. KEMAS: Jurnal Kesehatan Masyarakat, 11(1), pp.125-134. https://doi.org/10.15294/kemas.v11i1.3617
Utami. Konsep Diri Wanita Dengan Hiv Dan Aids Di Kota Makassar Tahun; 2017.
Safitri. Pengalaman Perempuan Dengan HIV/AIDS Dalam Menjalani Pengobatan. Vol. 2. Safitri; 2015. p. 9.
Indriastuti. Faktor-faktor yang Mempengaruhi Pencapaian Peran sebagai Ibu pada Perempuan dengan HIV/AIDS di Yogyakarta Factors that Affect Maternal Role Attainment in Women with HIV/AIDS in Yogyakarta. Vol. 15. Yogyakarta: Indriastuti; 2015. p. 75-83. https://doi.org/10.30597/mkmi.v15i4.7931
Arinze UC. The widow in South-East of Nigeria in Legal and customary turbulence: Need for mandatory paradigm shift. Int J Res Dev. 2011;8(1):1-14.
Bhirawa MA. Depression Description in Women PLWHA Lives in Jakarta. J Perkota. 2016; 8 (2): 94-117. https://doi.org/10.25170/ perkotaan.v8i2.278
Rahmaniyar RI, Rudhiati F . Phenomenological Studies: Nursing Needs Families of HIV-Aids Children in Indramayu Regency. PIN-LITAMAS. 2018;1(1):258-65.
Webel AR, Higgins PA. The relationship between social roles and self-management behavior in women living with HIV/AIDS. Women’s Health Issues. 2012 Jan 1;22(1):e27-33.
Evalina, R., 2016. A descriptive study of HIV infection in children in General Hospital Center Adam Malik Medan. Sari Pediatri, 14(2), pp.73-8. https://doi.org/10.14238/sp14.2.2012.73-8
Halim, Y., Syamsulhuda, B.M. and Kusumawati, A., 2016. Behavior-Related Factors Pregnant Women in HIV Examination in Public Health Center Work Areas Halmahera Semarang City. J Community Health. (Undip), 4(5), pp.395-405. https://doi. org/10.14710/jpki.12.1.115-133
Siswanto, F.K., 2017. Implementation of Protection of the Rights of Children with Patients HIV / AIDS. Legal Perspective, 15(2), pp.238-250.
Nyblade L, Field ML. Women, Communities, and the Prevention of Mother-to-Child Transmission of HIV: Issues and Findings from Community Research in Botswana and Zambia. Washington, DC: The International Center for Research on Women; 2000.
Milevsky SN. Maternal and paternal parenting styles in adolescents: Associations with self-esteem, depression and life-satisfaction. J Child Fam Stud. 2007;16:39-47. https://doi.org/10.1007/s10826-006-9066-5
Dariyo A. Psikologi Perkembangan Anak Tiga Tahun Pertama. Bandung: Refika Aditama; 2011.
Schuft L, Duval E, Thomas J, Ferez S. To be or not to be sick and tired: Managing the visibility of HIV and HIV-related fatigue. Health (London). 2018;22(4):317-36. https://doi.org/10.1177/1363459317693406 PMid:28401815
Handayani I. Pengalaman injecting drug users living with HIV/ AIDS menjalani terapi antiretrovial. J Keperawatan Indones. 2012;15(2):103-8. https://doi.org/10.7454/jki.v15i2.34
Murphy M, Roberts DA, K. J, Herbeck D. HIV disease impact on mothers: What they miss during their children’s developmental years. J Child Fam Stud. 2011;20(3):361-9. https://doi.org/10.1007/s10826-010-9400-9 PMid:21637348
Lee LL. Parenting styles and emotional intelligence of HIV affected children in Thailand AIDS Care. 2012;25(12):1536-43. https://doi.org/10.1080/09540121.2013.793264 PMid:23651471
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