Family Support: A Caregiver Experience in Caring for Nasopharynx Cancer Patients in Yogyakarta

Authors

  • Ema Waliyanti School of Nursing, Universitas Muhammadiyah Yogyakarta, Bantul, Daerah Istimewa Yogyakarta 55183, Indonesia
  • Harumi Iring Primastuti School of Nursing, Universitas Muhammadiyah Yogyakarta, Bantul, Daerah Istimewa Yogyakarta 55183, Indonesia

DOI:

https://doi.org/10.3889/oamjms.2021.5772

Keywords:

Family Support, Nasopharyngeal Cancer, Yogyakarta

Abstract

BACKGROUND: Increasing the incidence of nasopharyngeal cancer causes an increase mortality in sufferers. Family support is an important aspect of the treatment of patients that very helpful to strengthen psychologically and make patients more enthusiastic about undergoing treatment. Patients who have high enthusiasm will improve their quality of life so that family support is needed in treating patients.

AIM: This study aims to explore family experiences in providing support in the care of nasopharyngeal cancer patients in Yogyakarta.

METHODS: This research uses qualitative method with phenomenological approach. Data collected through in-depth interviews. Informants in this study amounted to 12 people consisting of patients and families determined by purposive sampling. This research was conducted in Sleman Regency from January to April 2019. Data validity uses source triangulation, member checking, and peer debriefing. Analysis of the data in this study using the help of OpenCode 4.02 software.

RESULTS: The results showed that the treatment of patients with nasopharyngeal cancer was influenced by several factors, namely, family perceptions in caring for patients, family knowledge about the disease, and family information sources. These factors will affect the family process in providing care to patients including family support, family communication, and medication that have been undertaken. Family support is provided in the care of nasopharyngeal cancer patients in the form of emotional, informational, instrumental, appreciation, and spiritual support. In addition, in carrying out patient care, there are several obstacles, namely, transportation, administrative, and financial obstacles.

CONCLUSION: The family is expected to always provide support to patients in the form of emotional support, informational, instrumental, and appreciation as well as spiritual support for the success of treatment of the patient.

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References

Estania AP, Sulistyo H, Wahyono DJ. Relative expression of BRLF1 epstein-barr virus mRNA from tumor tissue biopsy in paraffin block as a marker of biological pathogenesis of nasopharyngeal carcinoma. J Biosfera. 2017;34(2):59-66. https://doi.org/10.20884/1.mib.2017.34.2.409 DOI: https://doi.org/10.20884/1.mib.2017.34.2.409

Ariwibowo H. Risk factors for nasopharyngeal carcinoma. J CDK 204. 2013;40(5):4.

Wijaya FO, Soeseno B. Early detection and diagnosis of carcinoma nasopharynx. J CDK-254. 2017;44(7):478-81.

Arditawati Y. Analisa Hubungan Antara Faktor Risiko dengan Tipe Hispatologik pada Karsinoma Nasofaring. Semarang, Indonesia: Doctoral Dissertation Faculty of Medicine Universitas Diponegoro; 2011.

Infodatin Pusat Data dan Informasi Kementerian Kesehatan RI Stop Kanker. Available from: http://www.depkes.go.id/resources/download/pusdatin/infodatin/infodatinkanker.pdf. [Last accessed on 2020 Dec 20]

World Health Organization. The Global Cancer Observatory Nasopharynx. Geneva: World Health Organization; 2019.

World Health Organization. The Global Cancer Observatory Indonesia. Geneva: World Health Organization; 2020.

Faisal HH. Gambaran Karakteristik Karsinoma Nasofaring dan Faktor-Faktor yang Mempengaruhi Prognosis. Indonesia: Undergraduate Thesis Universitas Indonesia; 2016.

Tang Y, Luo D, Rong X, Shi X, Peng Y. Psychological disorders, cognitive dysfunction and quality of life in nasopharyngeal carcinoma patients with radiation-induced brain injury. PLoS One. 2012;7(6):e36529. https://doi.org/10.1371/journal.pone.0036529 PMid:22701557 DOI: https://doi.org/10.1371/journal.pone.0036529

Wahyuni D, Huda N, Utami GT. Phenomenological studies: Experience of advanced cancer patients undergoing chemotherapy. J Online Mahasiswa Bidang Ilmu Keperawatan. 2015;2(2):1041-7. https://doi.org/10.32584/jikm.v2i1.278 DOI: https://doi.org/10.32584/jikm.v2i1.278

Daulay NM, Setiawan S, Febriany N. Family experience as a caregiver in caring for stroke patients at home. J Keperawatan Padjadjaran. 2014;2(3):161-70. https://doi.org/10.24198/jkp.v2n3.4 DOI: https://doi.org/10.24198/jkp.v2n3.4

Park M, Chesla CK. Understanding complexity of Asian American family care practices. Arch Psychiatr Nurs. 2010;24(3):189-201. https://doi.org/10.1016/j.apnu.2009.06.005 PMid:20488345 DOI: https://doi.org/10.1016/j.apnu.2009.06.005

Kartika AW, Permatasari H, Wiarsih W. Family Experience in Caring for Chronic Pain Sufferers. J Keperawatan Indones. 2015;18(1):51-8. https://doi.org/10.7454/jki.v18i1.398 DOI: https://doi.org/10.7454/jki.v18i1.398

Widari NP, Serlinda PM. Support system keluarga dengan kualitas hidup pasien kanker di yayasan kanker Indonesia Surabaya. J Keperawatan. 2018;7(2):106. https://doi. org/10.47560/kep.v7i2.106 DOI: https://doi.org/10.47560/kep.v7i2.106

Susanti NL. Family support in improving the quality of life of cervical cancer patients. J Ners Lentera. 2017;5(2):106-15. https://doi.org/10.20473/jn.v11i12016.112-117 DOI: https://doi.org/10.20473/jn.V11I12016.112-117

Werdani YD. Effect of caregiving in cancer patients on the level of caregiver burden. J Ners Midwifery. 2018;5(3):249-56. https://doi.org/10.26699/jnk.v5i3.art.p249-256 DOI: https://doi.org/10.26699/jnk.v5i3.ART.p249-256

Huda N, Sitorus R. Family Experience Caring for Cachexia Patients in Advanced Stage Cancer. J Parallela. 2014;1(1):25-34.

Afiyah RK. Family support affects adaptability (applying Roy’s Adaptation model) to cancer patients at the East Java branch of the Indonesian Cancer Foundation. J Health Sci. 2017;10(1):150. https://doi.org/10.33086/jhs.v10i1.150 DOI: https://doi.org/10.33086/jhs.v10i1.150

Rahayuwati L, Ibrahim K, Komariah M. Treatment options for breast cancer during chemotherapy: a case study. J Keperawatan Indones. 2017;20(2):118-27. https://doi.org/10.7454/jki.v20i2.478 DOI: https://doi.org/10.7454/jki.v20i2.478

Hadisiwi P, Arifin HS. Communication experience of people with cervical cancer in seeking treatment information in West Java. J Kajian Komunikasi. 2018;6(1):51. https://doi.org/10.24198/jkk. v6i1.15388 DOI: https://doi.org/10.24198/jkk.v6i1.15388

Witjaksono AM, Maulina VV. Gambaran perceived social support Perceived social support in patients with advanced cancer who are undergoing palliative care. J Psikogenesis. 2016;4(1):12. https://doi.org/10.24854/jps.v4i1.514 DOI: https://doi.org/10.24854/jps.v4i1.514

Sari DP. Gambaran Dukungan Keluarga pada Pasien Kanker yang Menjalani Terapi di RSUD Panembahan Senopati Bantul. Yogyakarta: Undergraduate Thesis Universitas Muhammadiyah Yogyakarta; 2014. https://doi.org/10.30989/mik.v6i1.157 DOI: https://doi.org/10.30989/mik.v6i1.157

Anita A. Palliative care and quality of life for people with cancer. J Kesehatan. 2016;7(3):508. https://doi.org/10.26630/jk.v7i3.237 DOI: https://doi.org/10.26630/jk.v7i3.237

Surry K, Yahya M. Interpersonal communication of C-four members in motivating children with cancer in Aceh (descriptive qualitative study in the children cancer care community (C-Four) Aceh). J Ilmiah Mahasiswa FISIP Unsyiah. 2018;3:159-68. https://doi.org/10.25124/liski.v3i2.1056 DOI: https://doi.org/10.25124/liski.v3i2.1056

Waliyanti E, Tetra Dewi FS, Supriyati S, Renske F. Treatment seeking behaviour of nasopharyngeal cancer patients in Yogyakarta, Indonesia. Pan Afr Med J. 2018;29:98. https://doi.org/10.11604/pamj.2018.29.98.12817 PMid:29875979 DOI: https://doi.org/10.11604/pamj.2018.29.98.12817

Ambroggi M, Biasini C, Del Giovane C, Fornari F, Cavanna L. Distance as a barrier to cancer diagnosis and treatment: Review of the literature. Oncologist. 2015;20(12):1378-85. https://doi.org/10.1634/theoncologist.2015-0110 DOI: https://doi.org/10.1634/theoncologist.2015-0110

Syed ST, Gerber BS, Sharp LK. Traveling towards disease: Transportation barriers to health care access. J Community Health. 2013;38(5):976-93. https://doi.org/10.1007/s10900-013-9681-1 PMid:23543372 DOI: https://doi.org/10.1007/s10900-013-9681-1

Zuckerman KE, Perrin JM, Hobrecker K, Donelan K. Barriers to Specialty Care and Specialty Referral Completion in the Community Health Center Setting. J Pediatr. 2013;162(2):409- 414. https://doi.org/10.1016/j.jpeds.2012.07.022 PMid:22929162 DOI: https://doi.org/10.1016/j.jpeds.2012.07.022

Altice CK, Banegas MP, Tucker-Seeley RD, Yabroff KR. Financial hardships experienced by cancer survivors: A systematic review. J Natl Cancer Inst. 2017;109(2):djw205. https://doi.org/10.1093/jnci/djw205 PMid:27754926 DOI: https://doi.org/10.1093/jnci/djw205

Handian FI, Widjajanto PH, Sumarni DW. Motivation, barriers and strategies of poor family parents in caring for children with acute lymphoblastic leukemia (ALL). J Care. 2017;5(1):77-91.

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Published

2021-04-15

How to Cite

1.
Waliyanti E, Primastuti HI. Family Support: A Caregiver Experience in Caring for Nasopharynx Cancer Patients in Yogyakarta. Open Access Maced J Med Sci [Internet]. 2021 Apr. 15 [cited 2024 Nov. 21];9(T4):245-52. Available from: https://oamjms.eu/index.php/mjms/article/view/5772