Family Experience during Patient Assistance Process in General Intensive Care Unit: A Phenomenology Study
DOI:
https://doi.org/10.3889/oamjms.2021.5804Keywords:
family experience, ICU, phenomenologyAbstract
BACKGROUND: Intensive care unit (ICU) treatment can lead to fear, anxiety, depression, panic, and tension in the family. Place of the family as active presence, guardian, facilitator, historian, and coaching of the family cannot be separated from the recovery process. During the assistance of ICU patients, the family is faced with a strange environment, strict rules, emotional stress, and everyday life changes that have caused them to encounter psychological and physiological concerns.
AIM: This study aims to describe and interpret of the family’s experience during assistance patient in the ICU.
METHODS: A phenomenological methodology is used to explore experience of family. In-depth interviews were conducted on nine participants who were selected using purposive sampling. Data were analyzed by Colaizzi techniques, began with read transcripts, look for phenomenon, formulated data, organized, and verified to the participants.
RESULTS: The result is presented in three themes; physically and psychologically tired; good language is a medicine, strengthens each other’s companion.
CONCLUSION: The support of the patient in the ICU helps the family face a number of stressful circumstances. Adaptive coping and psychosocial help from health care workers and friends build a supportive family to cope with the difficulties when supporting patients in the ICU.
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References
Celik S, Genc G. Sleep problems, anxıety, depressıon and fatıgue on family members of adult intensıve care unıt patıents. Int J Nurs Pract. 2016;22(5):512-22. https://doi.org/10.1111/ijn.12451 PMid:27357996 DOI: https://doi.org/10.1111/ijn.12451
Farhan Z, Ibrahim K, Sriati A. Prediktor stres keluarga akibat anggota keluarganya dirawat di general intensive care unit. Majalah Kedokteran Bandung. 2014;46(3):150-4. https://doi.org/10.15395/mkb.v46n3.316 DOI: https://doi.org/10.15395/mkb.v46n3.316
McAdam JL, Puntillo K. Symptoms experinced by family members if patients in intensive care units. Am J Crit Care. 2009;18(3):200- 10; quiz 210. https://doi.org/10.4037/ajcc2009252 PMid:19411580 DOI: https://doi.org/10.4037/ajcc2009252
Al-Mutair AS, Plummer V, Brien AO, Clerehan R. Family needs and involvement in the intensive care unit: A literature review. J Clin Nurs. 2013;22(13-14):1805-17. https://doi.org/10.1111/jocn.12065 PMid:23534510 DOI: https://doi.org/10.1111/jocn.12065
Huffines M, Johnson KL, Naranjo LL, Lissauer ME, Fishel MA, D’Angelo Howes SM, et al. Improving family satisfaction and participation in decision making in an intensive care unit. Crit Care Nurse. 2013;33(5):56-69. https://doi.org/10.4037/ccn2013354 PMid:24085828 DOI: https://doi.org/10.4037/ccn2013354
Azoulay E, Chaize M, Kentish-Barnes N. Involvement of ICU families in decisions: Fine-tuning the partnership. Ann Intens Care. 2014;4(1):37. https://doi.org/10.1186/s13613-014-0037-5 PMid:25593753 DOI: https://doi.org/10.1186/s13613-014-0037-5
McAdam JL, Dracup KA, White DB, Fontaine DK, Puntillo KA. Symptom experiences of family members of intensive care unit patients at high risk for dying. Crit Care Med. 2010;4(38):1078-85. https://doi.org/10.1097/ccm.0b013e3181cf6d94 PMid:20124890 DOI: https://doi.org/10.1097/CCM.0b013e3181cf6d94
Płaszewska-Żywko L, Gazda D. Emotional reactions and needs of family members of ICU patients. Anaesthesiol Intensive Ther. 2012;44(3):145-9. PMid:23110291
Turner-Cobb JM, Smith PC, Ramchandani P, Begen FM, PadkinA. The acute psychobiological impact of the intensive care experience on relatives. Psychol Health Med. 2016;21(1):20-6. https://doi.org/10.1080/13548506.2014.997763 PMid:25572144 DOI: https://doi.org/10.1080/13548506.2014.997763
Schmidt M, Azoulay E, Syndrome PC. Having a loved one in the ICU: The forgotten family. Curr Opin Crit Care. 2012;18(5):540-7. https://doi.org/10.1097/mcc.0b013e328357f141 PMid:22914431 DOI: https://doi.org/10.1097/MCC.0b013e328357f141
Choi JY, Tate JA, Hoffman LA, Schulz R, Ren D, Donahoe MP. Fatigue in family caregivers of adult intensive care unit survivors. J Pain Symptom Manage. 2014;48(3):353-63. https://doi.org/10.1016/j.jpainsymman.2013.09.018 PMid:24439845 DOI: https://doi.org/10.1016/j.jpainsymman.2013.09.018
Kao Y, Chen C, Chen F, Lin Y, Perng S, Lin H, et al. Effects of resourcefulness on sleep disturbances, anxiety, and depressive symptoms in family members of intensive care unit patients. Arch Psychiatric Nurs. 2016;30(5):607-13. https://doi.org/10.1016/j.apnu.2016.02.002 PMid:27654246 DOI: https://doi.org/10.1016/j.apnu.2016.02.002
Day A, Haj-Bakri S, Lubchansky S, Mehta S. Sleep, anxiety and fatigue in family members of patients admitted to the intensive care unit: A questionnaire study. Crit Care. 2013;17(3):R91. https://doi.org/10.1186/cc12736 PMid:23705988 DOI: https://doi.org/10.1186/cc12736
Corwin DS. Half of the family members of critically ill patients experience excessive daytime sleepiness. HHS Public Access 2015;40(8):1124-31. DOI: https://doi.org/10.1007/s00134-014-3347-z
Miyagi M, Miyatani M, Nakao T. Relation between choice induced preference change and depression. PLoS One. 2017;12(6):e0180041. https://doi.org/10.1371/journal.pone.0180041 DOI: https://doi.org/10.1371/journal.pone.0180041
Wigert H, Blom DM, Bry K. Parents experiences of communication with neonatal intensive-care unit staff: An interview study. BMC Pediatr. 2014;14(1):304. https://doi.org/10.1186/s12887-014-0304-5 PMid:25492549 DOI: https://doi.org/10.1186/s12887-014-0304-5
Gill M, Bagshaw SM, Mckenzie E, Oxland P, Oswell D, Boulton D, et al. Patient and family member-led research in the intensive care unit: A novel approach to patient-centered research. 2016a;11(8):e0160947. https://doi.org/10.1371/journal.pone.0160947 PMid:27494396 DOI: https://doi.org/10.1371/journal.pone.0160947
Garrouste-Orgeas M, Périer A, Mouricou P, Grégoire C, Bruel C, Brochon S, et al. Writing in and reading ICU diaries: Qualitative study of families’ experience in the ICU. PLoS One 2014;9(10):e110146. https://doi.org/10.1371/journal.pone.0110146 PMid:25329581 DOI: https://doi.org/10.1371/journal.pone.0110146
Polit DF, Beck CT. Essentials of Nursing Research: Appraising Evidence for Nursing Practice. 8th ed. China: Lippincontt Williams and Wilkins; 2014.
Afianti Y, Rachmawati IN. Metode Penelitian Kualitatif dalam Riset Keperawatan. Jakarta: Raja Grafindo; 2014.
Holloway I, Galvin K. Qualitative Research in Nursing and Healthcare; 2012. Available from: https://www.books.google. co.id/books. [Last accessed on 2020, Dec 02].
Creswell JW. Qualitative Inquiry and Research Design: Choosing among Five Approaches. Los Angeles, CA: Sage; 2013.
Behrend S, Riedemann NC, Gu A, Witte OW, Hartog CS. Family satisfaction in the intensive care unit: A quantitative and qualitative analysis. Intensive Care Med. 2013;39(6):1071-9. https://doi.org/10.1007/s00134-013-2862-7 PMid:23417207 DOI: https://doi.org/10.1007/s00134-013-2862-7
McGraw SA, Truog RD, Solomon MZ, Sellers DE, Meyer EC. I was able to still be her mom-parenting at end on life in the pediatric intensive care unit. NIH Public Access 2013;13(6):617-8. DOI: https://doi.org/10.1097/PCC.0b013e31825b5607
Urizzi F. Relatives’ experience of intensive care: The other side of hospitalization. Rev Lat Am Enfermagem. 2007;15(4):598- 604. https://doi.org/10.1590/s0104-11692007000400012 PMid:17923976 DOI: https://doi.org/10.1590/S0104-11692007000400012
McAdam JL, Fontaine DK, White DB, Dracup KA, Puntillo KA. Psychological symptoms of family members of high-risk intensive care unit patients. Am J Crit Care. 2014;21(9):386-93; quiz 394. https://doi.org/10.4037/ajcc2012582 PMid:23117902 DOI: https://doi.org/10.4037/ajcc2012582
Butler JM, Hirshberg EL, Hopkins RO, Brown M. Preliminary identification of coping profiles relevant to surrogate decision making in the ICU. PLoS One. 2016;11(11):e0166542. https://doi.org/10.1371/journal.pone.0166542 PMid:27835704 DOI: https://doi.org/10.1371/journal.pone.0166542
Adams JA, Anderson RA, Docherty SL, Tulsky JA, Steinhauser KE, Bailey DE Jr. Nursing strategies to support family members of ICU patients at high risk of dying. Heart Lung J Acute Crit Care. 2014;43(5):406-15. https://doi.org/10.1016/j.hrtlng.2014.02.001 PMid:24655938 DOI: https://doi.org/10.1016/j.hrtlng.2014.02.001
Jacob M, Horton C, Rance-Ashley S, Field T, Patterson R, Johnson C, et al. Needs of patients’ family members in an intensive care unit with continuous visitation. Am J Crit Care. 2016;25(2):118-25. https://doi.org/10.4037/ajcc2016258 PMid:26932913 DOI: https://doi.org/10.4037/ajcc2016258
Athanasiou BA, Papathanassoglou ED, Patiraki E, McCarthy MS, Giannakopoulou M. Visitation in Greek intensive care. Am J Crit Care. 2014;23(4):326-33. https://doi.org/10.4037/ajcc2014986 PMid:24986174 DOI: https://doi.org/10.4037/ajcc2014986
Als LC, Nadel S, Cooper M, Vickers B, Garralda ME. A supported psychoeducational intervention to improve family mental health following discharge from paediatric intensive care: feasibility and pilot randomised controlled trial. BMJ Open. 2015;5(12):e009581. https://doi.org/10.1136/bmjopen-2015-009581 PMid:26715482 DOI: https://doi.org/10.1136/bmjopen-2015-009581
Clark K, Milner KA, Beck M. Satisfaction with care delivered in the intensive care unit. Crit Care Nurse. 2016;36(6):e8-14. https://doi.org/10.4037/ccn2016276 PMid:27908955 DOI: https://doi.org/10.4037/ccn2016276
Salins NS, Deodhar J, Muckaden MA. Intensive care unit death and factors influencing family satisfaction of intensive care unit care. Indian J Crit Care Med. 2016;20(2):97-103. https://doi.org/10.4103/0972-5229.175942 PMid:27076710 DOI: https://doi.org/10.4103/0972-5229.175942
Omar AS, Sivadasan PC, Gul M, Taha R, Tuli AK, Singh R. Impact of fast-track discharge from cardiothoracic intensive care on family satisfaction. BMC Anesthesiol. 2015;15:78. https://doi.org/10.1186/s12871-015-0060-6 DOI: https://doi.org/10.1186/s12871-015-0060-6
Butler AE, Hall H, Willetts G. Family experience and PICU death: A meta-synthesis. 2015;136(4):e961-73. https://doi.org/10.1542/peds.2015-1068 PMid:26371203 DOI: https://doi.org/10.1542/peds.2015-1068
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Copyright (c) 2021 Dwi Safitri, Anna Kurnia, Much Al Jihad (Author)
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