Experience of Mother on Caring of Children with Low Birth Weight in an Urban Setting, Indonesia: A Descriptive Phenomenological Study

Authors

  • Zubaidah Zubaidah Faculty of Nursing, Universitas Indonesia Depok, Jakarta, Indonesia
  • Yeni Rustina Faculty of Nursing, Universitas Indonesia Depok, Jakarta, Indonesia
  • Nani Nurhaeni Faculty of Nursing, Universitas Indonesia Depok, Jakarta, Indonesia
  • Sutanto Priyo Hastono Faculty of Public Health, Universitas Indonesia Depok, Jakarta, Indonesia

DOI:

https://doi.org/10.3889/oamjms.2021.8260

Keywords:

Low birth weight, Premature, Mothers, Care demand, Qualitative study

Abstract

BACKGROUND: Low birth weight is a major public health issue; it causes higher mortality rate among neonatal. Therefore, it is essential for caregivers to know how to save the baby’s life with evidence-based practices at home. The previous studies found that low birth weight mothers had poor awareness caring their babies at home care adequately.

AIM: The objective of the study was to explore experience of mothers on caring for children with low birth weight from an urban setting in a low-middle-income country.

METHODS: This was a descriptive phenomenological approach. This study was conducted in a rural setting in the Semarang region of Indonesia. Ten mothers whose babies with low birth weight had been discharged from the perinatology care unit in a secondary level hospital and resided in Semarang were interviewed in their homes using a semi-structured interview guide. Data were audiotaped, transcribed verbatim, and analyzed inductively by content analysis.

RESULTS: Twenty mothers aged 20–37 years were interviewed. Most of the babies were moderate to late preterm, and the gestational age at delivery ranged between 33 and 38 weeks gestation, and the birth weights of the babies ranged between 1.4 and 2 kg. Five major themes emerged, which included the psychological response of mothers, sharing information related to the care procedure, breastfeeding, social support, and health-seeking behavior.

CONCLUSIONS: The findings indicate that home management of low birth weight babies poses multiple needs and is associated with poor quality of care. Hence, extensive education and identification of other social support systems are needed to augment facility-based care for mothers and their babies.

Downloads

Download data is not yet available.

Metrics

Metrics Loading ...

Plum Analytics Artifact Widget Block

References

Lawn JE, Blencowe H, Oza S, You D, Lee AC, Waiswa P, et al. Every newborn: Progress, priorities, and potential beyond survival. Lancet. 2014;384(9938):189-205. https://doi.org/10.1016/S0140-6736(14)60496-7 PMid:24853593 DOI: https://doi.org/10.1016/S0140-6736(14)60496-7

UNICEF GHANA. World Prematurity Day 2015. Ghana: UNICEF GHANA; 2015.

Pristya TY, Novitasari A, Hutami MS. PNovitasari, and M. S. Hutami, “Prevention and Control of LBW in Indonesia: Systematic Review. Indones J Health Dev. 2020;2(3):175-82.

Liu L, Johnson HL, Cousens S, Perin J, Scott S, Lawn JE, et al. Global, regional, and national causes of child mortality: An updated systematic analysis for 2010 with time trends since 2000. Lancet. 2012;379(9832):2151-61. https://doi.org/10.1016/S0140-6736(12)60560-1 PMid:22579125 DOI: https://doi.org/10.1016/S0140-6736(12)60560-1

Best KE, Tennant PWG, Rankin J. Survival, by birth weight and gestational age, in individuals with congenital heart disease: A population‐based study. J Am Heart Assoc. 2017;6(7):e005213. https://doi.org/10.1161/JAHA.116.005213 PMid:28733436 DOI: https://doi.org/10.1161/JAHA.116.005213

Calkins K, Devaskar SU. Fetal origins of adult disease. Curr Probl Pediatr Adolesc Health Care. 2011;41(6):158-76. PMid:21684471 DOI: https://doi.org/10.1016/j.cppeds.2011.01.001

World Health Organization. Preterm Birth. Geneva: World Health Organization; 2018. Available from: https://www.who.int/news-room/fact-sheets/detail/%0apreterm-birth%0a [Last accessed on 2021 Jul 20].

Ayiasi RM, Criel B, Orach CG, Nabiwemba E, Kolsteren P. Primary healthcare worker knowledge related to prenatal and immediate newborn care: A cross sectional study in Masindi, Uganda. BMC Health Serv Res. 2014;14:65. https://doi.org/10.1186/1472-6963-14-65 PMid:24511880 DOI: https://doi.org/10.1186/1472-6963-14-65

Darmstadt GL, Walker N, Lawn JE, Bhutta ZA, Haws RA, Cousens S. Saving newborn lives in Asia and Africa: Cost and impact of phased scale-up of interventions within the continuum of care. Health Policy Plan. 2008;23(2):101-17. https://doi.org/10.1093/heapol/czn001 PMid:18267961 DOI: https://doi.org/10.1093/heapol/czn001

Marsh DR, Darmstadt GL, Moore J, Daly P, Oot D, Tinker A. Advancing newborn health and survival in developing countries: A conceptual framework. J Perinatol. 2002;22(7):572-6. https://doi.org/10.1038/sj.jp.7210793 PMid:12368975 DOI: https://doi.org/10.1038/sj.jp.7210793

Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349-57. https://doi.org/10.1093/intqhc/mzm042 PMid:17872937 DOI: https://doi.org/10.1093/intqhc/mzm042

Kim H, Sefcik JS, Bradway C. Characteristics of qualitative descriptive studies: A systematic review. Res Nurs Health. 2017;40(1):23-42. https://doi.org/10.1002/nur.21768 PMid:27686751 DOI: https://doi.org/10.1002/nur.21768

Lincoln YS, Guba EG, Pilotta JJ. Naturalistic Inquiry Newbury Park. California: Sage; 1985. DOI: https://doi.org/10.1016/0147-1767(85)90062-8

Arnold L, Sawyer A, Rabe H, Abbott J, Gyte G, Duley L, et al. Parents’ first moments with their very preterm babies: A qualitative study. BMJ Open. 2013;3(4):e002487. https://doi.org/10.1136/bmjopen-2012-002487 PMid:23550091 DOI: https://doi.org/10.1136/bmjopen-2012-002487

Henderson J, Carson C, Redshaw M. Impact of preterm birth on maternal well-being and women’s perceptions of their baby: A population-based survey. BMJ Open. 2016;6(10):e012676. https://doi.org/10.1136/bmjopen-2016-012676 PMid:27855105 DOI: https://doi.org/10.1136/bmjopen-2016-012676

Adama EA, Bayes S, Sundin D. Parents’ experiences of caring for preterm infants after discharge from neonatal intensive care unit: A meta-synthesis of the literature. J Neonatal Nurs 2016;22(1):27-51. DOI: https://doi.org/10.1016/j.jnn.2015.07.006

Jefferies AL, Canadian Paediatric Society, Fetus and Newborn Committee. Going home: Facilitating discharge of the preterm infant. Paediatr Child Health. 2014;19(1):31-6. PMid:24627654 DOI: https://doi.org/10.1093/pch/19.1.31

Bernard RS, Williams SE, Storfer-Isser A, Rhine W, Horwitz SM, Koopman C, et al. Brief cognitive-behavioral intervention for maternal depression and trauma in the neonatal intensive care unit: A pilot study. J Trauma Stress. 2011;24(2):230-4. https://doi.org/10.1002/jts.20626 PMid:21438016 DOI: https://doi.org/10.1002/jts.20626

Lasiuk GC, Comeau T, Newburn-Cook C. Unexpected: An interpretive description of parental traumas’ associated with preterm birth. BMC Pregnancy Childbirth. 2013;13 Suppl 1:S13. https://doi.org/10.1186/1471-2393-13-S1-S13 PMid:23445715 DOI: https://doi.org/10.1186/1471-2393-13-S1-S13

Taylor LS. Maternal experiences of preterm birth. Infant. 2016;12(2):57-61.

Milgrom J, Gemmill AW, Bilszta JL, Hayes B, Barnett B, Brooks J, et al. Antenatal risk factors for postnatal depression: A large prospective study. J Affect Disord. 2008;108(1-2):147-57. https://doi.org/10.1016/j.jad.2007.10.014 PMid:18067974 DOI: https://doi.org/10.1016/j.jad.2007.10.014

Amankwaa LC, Pickler RH, Boonmee J. Maternal responsiveness in mothers of preterm infants. Newborn Infant Nurs Rev. 2007;7(1):25-30. DOI: https://doi.org/10.1053/j.nainr.2006.12.001

Giannì ML, Bezze E, Sannino P, Stori E, Plevani L, Roggero P, et al. Facilitators and barriers of breastfeeding late preterm infants according to mothers’ experiences. BMC Pediatr. 2016;16(1):1-8. DOI: https://doi.org/10.1186/s12887-016-0722-7

Kair LR, Flaherman VJ, Newby KA, Colaizy TT. The experience of breastfeeding the late preterm infant: A qualitative study. Breastfeed Med. 2015;10(2):102-6. https://doi.org/10.1089/bfm.2014.0121 PMid:25647732 DOI: https://doi.org/10.1089/bfm.2014.0121

Sawyer A, Rabe H, Abbott J, Gyte G, Duley L, Ayers S, et al. Parents’ experiences and satisfaction with care during the birth of their very preterm baby: A qualitative study. BJOG. 2013;120(5):637-43. https://doi.org/10.1111/1471-0528.12104 PMid:23289929 DOI: https://doi.org/10.1111/1471-0528.12104

Ward K. Perceived needs of parents of critically ill infants in a neonatal intensive care unit (NICU). Pediatr Nurs. 2001;27(3):281-6. PMid:12964668

Namaganda G, Oketcho V, Maniple E, Viadro C. Making the transition to workload-based staffing: Using the workload indicators of staffing need method in Uganda. Hum Resour Health. 2015;13:89. https://doi.org/10.1186/s12960-015-0066-7 PMid:26621251 DOI: https://doi.org/10.1186/s12960-015-0066-7

Gaucher N, Payot A. From powerlessness to empowerment: Mothers expect more than information from the prenatal consultation for preterm labour. Paediatr Child Health. 2011;16(10):638-42. https://doi.org/10.1093/pch/16.10.638 PMid:23204904 DOI: https://doi.org/10.1093/pch/16.10.638

Burnham N, Feeley N, Sherrard K. Parents’ perceptions regarding readiness for their infant’s discharge from the NICU. Neonatal Netw. 2013;32(5):324-34. https://doi.org/10.1891/0730-0832.32.5.324 PMid:23985470 DOI: https://doi.org/10.1891/0730-0832.32.5.324

Hariati S, Sutomo R, Lusmilasari L, Febriani AD, Kadar K. Discharge readiness of Indonesian mother with preterm infant in NICU. Enferm Clin. 2020;30:234-7. DOI: https://doi.org/10.1016/j.enfcli.2019.07.096

Phillips-Pula L, Pickler R, McGrath JM, Brown LF, Dusing SC. Caring for a preterm infant at home: A mother’s perspective. J Perinat Neonatal Nurs. 2013;27(4):335-44. https://doi.org/10.1097/JPN.0b013e3182a983be PMid:24164816 DOI: https://doi.org/10.1097/JPN.0b013e3182a983be

Hawes K, McGowan E, O’Donnell M, Tucker R, Vohr B. Social emotional factors increase risk of postpartum depression in mothers of preterm infants. J Pediatr. 2016;179:61-67. https://doi.org/10.1016/j.jpeds.2016.07.008 PMid:27502105 DOI: https://doi.org/10.1016/j.jpeds.2016.07.008

Adu-Bonsaffoh K, Oppong SA, Dassah ET, Seffah JD. Challenges in preterm birth research: Ghanaian perspective. Placenta. 2020;98:24-8. https://doi.org/10.1016/j.placenta.2020.04.016 PMid:33039028 DOI: https://doi.org/10.1016/j.placenta.2020.04.016

Adama EA, Sundin D, Bayes S. Sociocultural practices affecting the care of preterm infants in the Ghanaian community. J Transcult Nurs. 2021;32(5):458-65. https://doi.org/10.1177/1043659620975098 PMid:33225863 DOI: https://doi.org/10.1177/1043659620975098

Downloads

Published

2022-02-20

How to Cite

1.
Zubaidah Z, Rustina Y, Nurhaeni N, Hastono SP. Experience of Mother on Caring of Children with Low Birth Weight in an Urban Setting, Indonesia: A Descriptive Phenomenological Study. Open Access Maced J Med Sci [Internet]. 2022 Feb. 20 [cited 2024 Nov. 21];9(G):124-9. Available from: https://oamjms.eu/index.php/mjms/article/view/8260

Issue

Section

Nursing in Pediatrics

Categories