The Development of Psycho-educational Module of Dental Management for Primary Caregivers and Teachers of Autism Children: A Qualitative Study in Special Region of Yogyakarta, Indonesia

Authors

  • Arnela Nur Faculty of Dentistry, Gadjah Mada University, Yogyakarta, Indonesia
  • Sofia Retnowati Department Psychology and Cognitive sciences, Faculty of Psychology, Gadjah Mada University, Yogyakarta, Indonesia
  • Mei Neni Sitaresmi Department of Child Health, Faculty of Medicine, Health and Nursing, Gadjah Mada University, RS Sardjito Hospital, Yogyakarta, Indonesia https://orcid.org/0000-0002-8620-712X
  • Rinaldi Budi Utomo Faculty of Dentistry, Gadjah Mada University, Yogyakarta, Indonesia

DOI:

https://doi.org/10.3889/oamjms.2022.8550

Keywords:

Preventive, Autism, Psycho-education, Module, Dental health

Abstract

BACKGROUND: The prevalence of autism increases globally and in Indonesia. Children with autism experience intellectual, behavioral, and anxiety disorders, including fear of dental care. These children often experience difficulty brushing teeth and are reluctant to visit dental care facilities. The poor oral and dental cleanness in children with autism may increase the risk of dental and oral diseases such as periodontal disease and caries. One preventive effort is providing psycho-education to the child and the people surrounding them (parents or caretaker and teacher). Psycho-education modules should be adequate and based on the client’s needs.

AIM: The aim of the study was to explore the contents of the psycho-educational module as a guide for primary caregivers and teachers to prevent dental and oral health problems of the child with autism.

METHODS: We conducted a qualitative study using focus group discussions (FGD) and in-depth interviews from 12 November to 26 December 2020. This study involved 11 primary caregivers and 14 teachers of the autism-special school in Yogyakarta, Indonesia. The FGD and in-depth interviews were recorded and verbatim transcripted and were analyzed by thematic content analysis.

RESULTS: We found three topics required to maintain the dental and oral health of a child with autism, namely: Management of behavior in autistic children, oral-dental treatment, and nutrition management in dental-oral health in autistic children. Available materials used practical and straightforward language.

CONCLUSION: The study findings provide an important information as a new approach contained in the module on maintaining oral health to improve the health status of autistic children.

Downloads

Download data is not yet available.

Metrics

Metrics Loading ...

Plum Analytics Artifact Widget Block

References

American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorder. 5th ed. Arlington. VA: American Psychiatric Publishing; 2013. DOI: https://doi.org/10.1176/appi.books.9780890425596

Ministry of Educational and Culture. Educational Statistics Special School in Indonesia. Ministry of Educational and Culture; 2020. Available from: http://publikasi.data.kemdikbud.go.id/uploadDir/isi_E12EDA77-6E58-4660-A29C-CFBDAB029B3D_.pdf [Last accessed on 2022 Feb 07].

Suhaib F, Saeed A, Gu H, Kaleem M. Oral assessment of children with autism spectrum disorder in Rawalpindi Pakistan. Autism. 2019;23(1):81-6. https://doi.org/10.1177/1362361317730299 PMid:29076744 DOI: https://doi.org/10.1177/1362361317730299

Udhya J, Varadharaja MM, Parthiban J, Srinivasan I. Autism disorder (AD): An updated review for paediatric dentists. J Clin Diagn Res. 2014;8(2):275-9. https://doi.org/10.7860/jcdr/2014/7938.408 PMid:24701555

Naidoo M, Singh S. The oral health status of children with autism spectrum disorder in Kwazulu-Nata, South Africa. BMC Oral Health. 2018;18:165. https://doi.org/10.1186/s12903-018-0632-1 PMid:30314501 DOI: https://doi.org/10.1186/s12903-018-0632-1

Rachmawati D, Ernawati T. Status of oral hygiene and caries in students with special needs at SLB autism and TPA B SLB Branjangan Jember Regency, Warta Pengabdian. 2019;13(3):74-9. https://doi.org/10.19184/wrtp.v13i3.9501 DOI: https://doi.org/10.19184/wrtp.v13i3.9501

de Gonçalves JA, Moreira EA, Rauen MS, Rossi A, Borgatto AF. Associations between caries experience, nutritional status, oral hygiene, and diet in a multigenerational cohort. Pediatr Dent. 2016;38(3):203-11. PMid:27306244

Ranjan S, Nasser JA. Nutritional status of individuals with autism spectrum disorders: Do we know enough? Adv Nutr. 2015;6(4):397-407. https://doi.org/10.3945/an.114.007914 PMid:26178024 DOI: https://doi.org/10.3945/an.114.007914

Purohita BM, Singh A. Oral health status of 12-year-old children with disabilities and controls in Southern India. WHO South East Asia J Public Health. 2012;1(3):330-8. https://doi.org/10.4103/2224-3151.207029 PMid:28615559 DOI: https://doi.org/10.4103/2224-3151.207029

Demattei RD, Cuvo S, Maurizio RH. Oral assesment of children with an autism spectrum disorder. Dent Hyg. 2007;81(3):65. PMid:17908421

Jaber MA. Dental caries experience, oral health status and treatment needs of dental patients with autism. J Appl Oral Sci. 2011;19(3):212-7. https://doi.org/10.1590/S1678-77572011000300006 PMid:21625735 DOI: https://doi.org/10.1590/S1678-77572011000300006

AbdAllah EA, Metwalli NE, Badran AS. Educational and preventive program in improving oral health knowledge and oral hygiene practices of a group of autistic Egyptian children and their caregiver. Future Dent J. 2018;4:23-9. https://doi.org/10.1016/j.fdj.2018.02.001 DOI: https://doi.org/10.1016/j.fdj.2018.02.001

Thomas N, Blake S, Morris C, Moles DR. Autism and primary care dentistry: Parents’ experiences of taking children with autism or working diagnosis of autism for dental examinations. Int J Pediatr Dent. 2018;28(2):226-38. https://doi.org/10.1111/ipd.12345 PMid:29073339 DOI: https://doi.org/10.1111/ipd.12345

Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349-57. https://doi.org/10.1093/intqhc/mzm042 PMid:17872937 DOI: https://doi.org/10.1093/intqhc/mzm042

Murshid EZ. Parents dental knowledge and oral hygiene habits in saudi children with autism spectrum disorder. Dent Otolaryngol. 2014;14:2.

Orellana LM, Martinez-Sanchis S, Silvestre FJ. Training adult and children with autism spectrum disorder to be compliant with a clinical dental assessment using a TEACCH-based approach. J Aut Dev Disord. 2014;44(4):776-85. https://doi.org/10.1007/s10803-013-1930-8 PMid:24002415 DOI: https://doi.org/10.1007/s10803-013-1930-8

Blomqvist M, Dahllöf G, Bejerot S. Experiences of dental care and dental anxiety in adults with autism spectrum disorder. Autism Res Treat. 2014;2014:238764. https://doi.org/10.1155/2014/238764 PMid:25530879 DOI: https://doi.org/10.1155/2014/238764

Wibisono WL, Suharsini M, Wiguna T, Sudiroatmodjo B, Budiardjo SB, Auerkari EI. Perception of dental visit pictures in children with autism spectrum disorder and their caretakers: A qualitative study. J Int Soc Prev Community Dent. 2016;6:359-65. https//doi.org/10.4103/22310762.186791 PMid:27583225 DOI: https://doi.org/10.4103/2231-0762.186791

Orellana LM, Fuentealba CC, Espinoza LS, Luengo L. Psychoeducational intervention to improve oral assessment in people with autism spectrum disorder BIO-BIO region chil. Med Oral Patol Cir Bucal. 2019;24(1):37-46. http://doi.org/doi:10.4317/medoral.22560 PMid:30573708 DOI: https://doi.org/10.4317/medoral.22560

Chew LC, King NM, O’Donnell D. Autism: The etiology, management and implications for treatment modalities from the dental perspective. Dent Update. 2006;33(2):70-2,74-6,78-80 Passim. https://doi.org/10.12968/denu.2006.33.2.70 PMid:16610261 DOI: https://doi.org/10.12968/denu.2006.33.2.70

Yan CW, Jocelyn FH, Chuen LK, Man LA, Tung LW, Mei TK, et al. Brush up to a Health Smile-developing and Testing an Oral Health Educational Kit for Children with Autism Spectrum Disorder. Community Health Project Report, Faculty of Dentistry Dental Public Health. Hong Kong: The University of Hong Kong; 2018.

Duker LI, Henwood BF, Bluthenthal RN, Juhlin E, Polido JC, Cermak SA. Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration. Res Autism Spectrum Disord. 2017;39:63-72. https://doi.org/10.1016/j.rasd.2017.03.002 PMid:29098015 DOI: https://doi.org/10.1016/j.rasd.2017.03.002

Lewis C, Vigo L, Novak L, Klein E. Listening to parents: A qualitative look at the dental and oral care experiences of children with autism spectrum disorder. Am Acad Pediatr Dent. 2015;37(7):98E-104. PMid:26883603

Picardi A, Gigantesco A, Tarolla E. Parental burden and its correlates in families of children with autism spectrum disorder: A multicentre study with two comparison groups. Clin Pract Epidemiol Ment Health. 2018;14(1):143. http://doi.org/10.2174/1745017901814010143 PMid:30158998 DOI: https://doi.org/10.2174/1745017901814010143

Riyadi S, Rosmawati, Gumilar MS. The Effectiviness of brushing teeth video to improve autism parents skill in brushing teeth at SLB 2 Provinsi Jambi. J Dent Health. 2021;2:125-9. DOI: https://doi.org/10.31983/jkg.v8i2.7629

Kotha SB, Alfaraj NS, Ramdan TH, Alsalam MA, Ameer MJ, Almuzin ZM. Associations between diet, dietary and oral hygiene habits with caries occurrence and severity in children with autism at Dammam city, Saudi Arabia. Med Sci. 2018;6(6):1104-10. https://doi.org/10.3889/oamjms.2018.245 PMid:29983812 DOI: https://doi.org/10.3889/oamjms.2018.245

Essa MM. Personalized Food Intervention And Therapy For Autism Spectrum Disorder Management. Vol. 24. Berlin: Springer; 2020. https://doi.org/10.1007/978-3-030-30402-7 DOI: https://doi.org/10.1007/978-3-030-30402-7

Almushayt AS, Sharaf AA, Meligy OS, Tallab HY. Dietary and feeding habits in a sample of pre-school children in severe early childhood caries (S-ECC). JKAU Med Sci. 2009;16(4):13-36. https://doi.org/10.4197/med.16-4.2 DOI: https://doi.org/10.4197/Med.16-4.2

Shorgen KA, Wehmeyer ML, Palmer SB, Shoukup JH, Little TD, Garner N, Lawrence M. Examining individual and ecological predictors of the self determination of students with disabilities. Sage J. 2007;73(1):406. https://doi.org/10.1177 %2F001440290707300406

Downloads

Published

2022-03-01

How to Cite

1.
Nur A, Retnowati S, Sitaresmi MN, Utomo RB. The Development of Psycho-educational Module of Dental Management for Primary Caregivers and Teachers of Autism Children: A Qualitative Study in Special Region of Yogyakarta, Indonesia. Open Access Maced J Med Sci [Internet]. 2022 Mar. 1 [cited 2024 Apr. 25];10(G):253-9. Available from: https://oamjms.eu/index.php/mjms/article/view/8550

Issue

Section

Nursing in Dentistry

Categories

Funding data