Coping Strategy of Family in Treating Children with Thalassemia Mayor aged 6–12 Years in the Urban Area of Indonesia
DOI:
https://doi.org/10.3889/oamjms.2022.8914Keywords:
Coping strategy, Family, ThalassemiaAbstract
BACKGROUND: Thalassemia is a genetic blood disorder and has not been cured. Thalassemia children need special attention from the family as one of the efforts in treating children with thalassemia depends on coping strategies owned by the family.
AIM: This research aimed to discover and deeply explore coping family strategies in caring for children with thalassemia major aged 6–12 years.
METHODS: This study used quantitative and qualitative approaches (mixed methods). For quantitative study we used total sampling technique(66 samples). furthermore, for qualitative study, we used six participants with in depth-interview technique. The instrument was used the revised ways of coping scale questionnaire and interview guidelines.
RESULTS: The study showed that 62. 2% of respondents had a positive coping strategy, and (37.8%) had a negative coping mechanism. Furthermore, the qualitative analysis showed that age, education, employment status, and the number of childreninfluenced individual coping strategies. The interview results show three themes, namely the process of grieving, fear of stigma, and an increase in spiritual activity. It is recommended for families to follow health education on caring for children with thalassemia.Downloads
Metrics
Plum Analytics Artifact Widget Block
References
Kavitha K, Padmaja A. Strategies for enhancing quality of life in thalassemic children. BLDE Univ J Health Sci. 2017;2(2):69. https://doi.org/10.4103/bjhs.bjhs_17_17 DOI: https://doi.org/10.4103/bjhs.bjhs_17_17
Forget BG, Franklin Bunn H. Classification of the disorders of hemoglobin. Cold Spring Harbor Perspect Med. 2013;3(2):a011684. https://doi.org/10.1101/cshperspect.a011684 DOI: https://doi.org/10.1101/cshperspect.a011684
World Health Organization. Control of Genetic Diseases Report by the Secretariat. Geneva: World Health Organization; 2005.
Li DZ. Hemoglobin New York is not a matter in prenatal screening and diagnosis for β-thalassemia. Pediatr Hematol Oncol. 2008;25:769-71. https://doi.org/10.1080/08880010802435435 DOI: https://doi.org/10.1080/08880010802435435
Modell B, Darlison M. Global epidemiology of haemoglobin disorders and derived service indicators. Bull World Health Organ. 2008;86(6):480-7. PMid:18568278 DOI: https://doi.org/10.2471/BLT.06.036673
Babu S, Tv SB, Shantaram M. An incidence of β-thalassemia in South India-a review isolation of bioactive compounds and use as therapeutic drugs for neurodegenerative diseases from medicinal plants of Western Ghat region of Karnataka view project ecology and distribution of actinomycetes in nature-a review view project an incidence of β-Thalassemia in South India-a review. Int J Res Pharm Biosci. 2016;3(5):1-6.
Nufer L. The gamma-globin Repressors KLF1, BCL11A, and MBD2: The gamma-globin Repressors KLF1, BCL11A, and MBD2: Knowledge Gaps in the Literature Knowledge Gaps in the Literature Downloaded from Downloaded from. Richmond, VA: VCU University Archives; 2020. Available from: https://www.scholarscompass.vcu.edu/etd/6403
World Health Organization. Response to the Proposal for the Inclusion of Whole Blood and Red Blood Cells on the WHO Essential Medicines Lists (EML). Geneva: World Health Organization; 2007. Available from: https://www.thalassaemia.org.cy
Ilmu Keperawatan pada Fakultas Ilmu Keperawatan M. Universitas Indonesia Pengaruh Psikoedukasi Terhadap Kecemasan Dan Koping Orang Tua Dalam Merawat Anak Dengan Thalasemia Mayor Di Rsu Kabupaten Tangerang Banten Tesis Diajukan Sebagai Salah Satu Syarat Untuk Memperoleh Gelar. Indonesia: Universitas Indonesia; 2012. https://doi.org/10.7454/jki.v19i2.461 DOI: https://doi.org/10.7454/jki.v19i2.461
Salehi S, Morovati S. Coping behaviors in families with children suffering from thalassemia major and evaluating the implementation effect of nursing intervention on these behaviors. Int J Med Res Health Sci. 2016;5:58-63.
Miskam HM, Juhari R, Yaacob SN. Stress and Quality of Life among Mothers with Thalassemic Children in MALAYSIA. Int J Stud Children 2017;1:176-84.
Reinhard SC, Given B, Petlick NH, Bemis A. Supporting family caregivers in providing care. In: Patient Safety and Quality: An Evidence-based Handbook for Nurses. Ch. 14. Rockville, MD: Agency for Healthcare Research and Quality; 2008.
Saldanha SJ. Stress and coping among parents of children having Thalassemia. Int J Sci Res. 2013;4:438.
Biggs A, Brough P, Drummond S. Part four coping with stress 21 lazarus and folkman’s psychological stress and coping theory. In: The Handbook of Stress and Health: A Guide to Research and Practice. United States: Wiley; 2017. https://doi.org/10.1002/9781118993811.ch21 DOI: https://doi.org/10.1002/9781118993811.ch21
Maguire M, Delahunt B. Doing a Thematic Analysis: A Practical, Step-by-step Guide for Learning and Teaching Scholars. All Ireland J Higher Edu. 2017.
Ault P, Jones K. Understanding iron overload: Screening, monitoring, and caring for patients with transfusion-dependent anemias. Clin J Oncol Nurs. 2009;13(5):511-7. https://doi.org/10.1188/09.cjon.511-517 PMid:19793708 DOI: https://doi.org/10.1188/09.CJON.511-517
Richardson EM, Schüz N, Sanderson K, Scott JL, Schüz B. Illness representations, coping, and illness outcomes in people with cancer: A systematic review and meta-analysis. Psychooncology. 2017;26(6):724-37. https://doi.org/10.1002/pon.4213 DOI: https://doi.org/10.1002/pon.4213
Amaral MS, Reis AC, Pauna HF, Bernal SC, Massuda ET, Hyppolito MA, et al. Current Topics in Medicine and Medical Research. Vol. 6. Geneva, Switzerland: Book Publisher International; 2020.
Coffey JS. Parenting a Child with Chronic Illness: A Metasynthesis. Pediatr Nurs. 2006;32(1):51-9.
Baer K. A guide to living with thalassemia. Cooley’s Anemia Foundation. 2013.
Ahmadi M, Gheibizadeh M, Rassouli M, Ebadi A, Asadizaker M, Jahanifar M. Experience of uncertainty in patients with thalassemia major: A qualitative study. Int J Hematol Oncol Stem Cell Res. 2020;14(4):237-47. https://doi.org/10.18502/ijhoscr.v14i4.4479 PMid:33603985 DOI: https://doi.org/10.18502/ijhoscr.v14i4.4479
Rahman SA. Thalassaemia: A study on the perception of patients and family members. Med J Malaysia. 2011;66(4):326-34. PMid:22299552
Sujana E, Fatimah S, Hidayati NO. Kebutuhan spiritual keluarga dengan anak penderita penyakit kronis. J Pendidikan Keperawatan Indonesia. 2017;3(1):47-56. https://doi.org/10.17509/jpki.v3i1.7480 DOI: https://doi.org/10.17509/jpki.v3i1.7480
Andriyani S, Darmawan D. Hubungan antara pengetahuan dengan tingkat kecemasan ibu tentang hospitalisasi Pada Anak. J Keperawatan BSI. 2020;8(1):58-67. https://doi.org/10.17509/jpki.v4i2.13708 DOI: https://doi.org/10.17509/jpki.v4i2.13708
Downloads
Published
How to Cite
License
Copyright (c) 2022 Septian Andriyani, Suci Tuty Putri, Rahayu Savitri, Dadang Darmawan, Irawan Danismaya, Novi Malisa, Guling Setiawan, Upik Rahmi, Lina Anisa Nasution, Tunggul Sri Agus Setyaningsih (Author)
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
http://creativecommons.org/licenses/by-nc/4.0
