The Experience of Caregivers with First-Episode Psychosis Children at General Hospital of Dumai, Riau Province

Sartika Rajagukguk; Suryani Suryani; Titin Sutini; Fandro Armando Tasijawa

doi:10.3889/oamjms.2022.9226

Authors

Sartika Rajagukguk Department of Mental Health Nursing, Tengku Maharatu School of Health Science of Higher Education, Riau, Indonesia https://orcid.org/0000-0001-5166-7671
Suryani Suryani Department of Mental Health Nursing, Faculty of Nursing, Universitas Padjadjaran, Jawa Barat, Indonesia
Titin Sutini Department of Mental Health Nursing, Faculty of Nursing, Universitas Padjadjaran, Jawa Barat, Indonesia
Fandro Armando Tasijawa Department of Mental Health Nursing, Faculty of Health, Universitas Kristen Indonesia Maluku, Nusaniwe, Indonesia https://orcid.org/0000-0002-0444-3840

DOI:

https://doi.org/10.3889/oamjms.2022.9226

Keywords:

First-episode psychosis, Phenomenology, Primary caregiver, Qualitative

Abstract

BACKGROUND: Caregivers with first-episode psychosis (FEP) children often encounter problems and challenges. The importance of caregiver role in managing FEP appropriately will influence the life quality of a person with psychosis.

AIM: The study aimed to explore the experience of caregivers who have children with FEP at General Hospital of Dumai.

METHODS: The study was a qualitative study with a phenomenology approach. In-depth interviews were conducted with eight primary caregivers aged 41–58 years with FEP children at General Hospital of Dumai. The interview transcript was analyzed using the Colaizzi method.

RESULTS: Based on the study, five essential themes emerged, for example, caring for FEP is harder than looking after a thousand buffaloes, mixed feelings, believing that the child experiences mystical things, the extended family is a supporter in caring for FEP, and praying and surrender to God.

CONCLUSION: The implications for nursing practice are implementing support group therapy and family psychoeducation programs for reduce the caregiver burden.

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