The Experience of Chronic Sorrow among Indonesian Mothers Who have Suffered Recent Perinatal Loss

Authors

  • Erni Samutri Department of Nursing https://orcid.org/0000-0002-3996-7775
  • Widyawati Widyawati Department of Child and Maternity Nursing, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia https://orcid.org/0000-0002-7923-1703
  • Wenny Artanty Nisman Department of Child and Maternity Nursing, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia
  • Joel Gittelsohn Department of International Health, Center for Human Nutrition, Bloomberg School of Public Health, The Johns Hopkins University, Baltimore, USA
  • Hamam Hadi Department of Public Health, Faculty of Health Science, The University of Alma Ata, Yogyakarta, Indonesia
  • Emma C. Lewis Department of International Health, Center for Human Nutrition, Bloomberg School of Public Health, The Johns Hopkins University, Baltimore, USA https://orcid.org/0000-0001-7360-396X
  • Lia Endriyani Department of Nursing, Faculty of Health Science, The University of Alma Ata, Yogyakarta, Indonesia https://orcid.org/0000-0002-1406-0499
  • Sofyan Indrayana Department of Nursing, Faculty of Health Science, The University of Alma Ata, Yogyakarta, Indonesia https://orcid.org/0000-0002-7804-560X
  • Artha Mevia Ruly Afita Department of Nursing, Faculty of Health Science, The University of Alma Ata, Yogyakarta, Indonesia

DOI:

https://doi.org/10.3889/oamjms.2022.9502

Keywords:

Chronic sorrow, Perinatal loss, Grief, Child loss

Abstract

Background: Perinatal death results in physical loss of a child as well as symbolic loss (loss of self, hope and self-esteem) experienced by many parents. Loss is often expressed via a grief response that can develop into chronic sorrow. Ineffective coping strategies may increase susceptibility to complications associated with chronic sorrow. These complications can include clinical depression, dysthymic disorder, post-traumatic stress disorder, attachment disorder, drug dependence, psychosis, and suicidal ideation. Therefore, it is crucial to understand the barriers and facilitators to chronic sorrow particularly among vulnerable populations.  

Aim: To explore the experience of chronic sorrow among Indonesian women who have suffered perinatal loss. 

Methods: The present qualitative study utilized a descriptive phenomenological approach. Participants included women who experienced chronic sorrow due to perinatal loss within the past seven weeks to three years. Maximum variation sampling was used based on women’s current number of children. Data were collected using semi-structured interviews and analyzed using a modified Stevick-Colaizzi-Keen method.  

Results: Three key themes emerged from the data: (1) recurrent experiences of grief are common particularly when exposed to certain triggers (memories from pregnancy, mementos); (2) adequate coping strategies and emotional support are needed to help treat grief; and (3) specific characteristics of chronic sorrow are associated with perinatal loss, such as grief that feels diminished and the presence of another child serving as both a cure and a trigger of sorrow. 

Conclusion: Chronic sorrow as a result of perinatal loss is experienced repeatedly when mothers face certain triggers. We have identified two characteristics (diminished grief, having another child serve to both cure and trigger sorrow) that are specific to the experience of chronic sorrow compared to that of general grief. It is important to understand the experience of chronic sorrow and how coping strategies and a support system can help grieving mothers to overcome their loss. 

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References

MacDorman MF, Gregory EC. Fetal and Perinatal Mortality: United States, 2013. Natl Vital Stat Rep. 2015;64(8):1-24. PMid:26222771

Paris GF, Montigny F, Pelloso SM. Factors associated with the grief after stillbirth: A comparative study between Brazilian and Canadian women. Rev Esc Enferm USP. 2016;50(4):546-53. https://doi.org/10.1590/S0080-623420160000500002 PMid:27680038 DOI: https://doi.org/10.1590/S0080-623420160000500002

Statistics Indonesia. Neonatal Death Rate And Infant Mortality Rate Per 1000 Birth By Province. 2021. Available from: https://www.bps.go.id/subject/30/kesehatan.html#subjekViewTab3 [Last accessed on 2022 Jan 30].

Guidelines for Health Care Professionals Supporting Families Experiencing a Perinatal Loss, in Paediatrics and Child Health. Canada: Pulsus Group Inc.; 2001. p. 469. DOI: https://doi.org/10.1093/pch/6.7.469

Eakes GG, Burke MA, Hainsworth MA. Middle-range theory of chronic sorrow. Image J Nurs Sch. 1998;30(2):179-84. https://doi.org/10.1111/j.1547-5069.1998.tb01276.x PMid:9775562 DOI: https://doi.org/10.1111/j.1547-5069.1998.tb01276.x

Daitchman R. Perinatal Loss. Canada: Jewish General Hospital; 2012.

Puia DM, Lewis CT, Beck CT. Experiences of obstetric nurses who are present for a perinatal loss. J Obstet Gynecol Neonatal Nurs. 2013;42(3):321-31. https://doi.org/10.1111/1552-6909.12040 PMid:23682697 DOI: https://doi.org/10.1111/1552-6909.12040

Samutri E, Widyawati W, Nisman WA. Acute grief: Grief experience of the mothers with perinatal loss. Dinamika Kesehatan J Kebidanan Keperawatan. 2020;10(1):132-45. DOI: https://doi.org/10.33859/dksm.v10i1.445

Roos S. Chronic Sorrow A Living Loss. The Saries in Death, Dying, and Bereavement. 2nd ed. New York: Routledge; 2018. DOI: https://doi.org/10.4324/9781315277394

Casale A. Distinguishing the Concept of Chronic Sorrow From Standard Grief: An Empirical Study of Infertile Couples, in New York University School of Social Work. New York; New York University School of Social Work; 2009.

Gordon J. An evidence-based approach for supporting parents experiencing chronic sorrow. Pediatr Nurs. 2009;35(2):115-9. PMid:19472675

Borkon DA. Is Chronic Sorrow Present in Maternal Caregivers. Minnesota: Alfred Adler Graduate School; 2008.

Murphy SA, Johnson LC, Wu L, Fan JJ, Lohan J. Bereaved parents’ outcomes 4 to 60 months after their children’s deaths by accident, suicide, or homicide: A comparative study demonstrating differences. Death Stud. 2003;27(1):39-61. https://doi.org/10.1080/07481180302871 PMid:12508827 DOI: https://doi.org/10.1080/07481180302871

Weingarten K. Sorrow: A therapist’s reflection on the inevitable and the unknowable. Fam Process. 2012;51(4):440-55. https://doi.org/10.1111/j.1545-5300.2012.01412.x PMid:23230977 DOI: https://doi.org/10.1111/j.1545-5300.2012.01412.x

Yugistyowati A. Phenomenological study: Grieving process and coping of mothers with premature infant in neonatal intensive care unit. J Ners Dan Kebidanan Indones. 2018;7(3):160-7.

Arnold J, Gemma PB. The continuing process of parental grief. Death Stud. 2008;32(7):658-73. https://doi.org/10.1080/07481180802215718 PMid:18924293 DOI: https://doi.org/10.1080/07481180802215718

Buckley CJ. When sorrow never stops. Chronic sorrow after the death of a child. J Christ Nurs. 2016;33(1):22-5. PMid:26817366 DOI: https://doi.org/10.1097/CNJ.0000000000000231

Arnold J, Gemma PB, Cushman LF. Exploring parental grief: Combining quantitative and qualitative measures. Arch Psychiatr Nurs. 2005;19(6):245-55. https://doi.org/10.1016/j.apnu.2005.07.008 PMid:16308124 DOI: https://doi.org/10.1016/j.apnu.2005.07.008

Streubert H, Carpenter D. Qualitative Research in Nursing Advancing the Humanistic Imperative. 5th ed. China: Wolters Kluwer Health, Lippincott Williams & Wilkins; 2011.

Swanson KM. Research-based practice with women who have had miscarriages. Image J Nurs Sch. 1999;31(4):339-45. https://doi.org/10.1111/j.1547-5069.1999.tb00514.x PMid:10628100 DOI: https://doi.org/10.1111/j.1547-5069.1999.tb00514.x

Teel CS. Chronic sorrow: Analysis of the concept. J Adv Nurs. 1992;6(1):27-40. PMid:1585085

Eakes GG, Burke ML, Hainsworth MA. Chronic sorrow: The experiences of bereaved individuals. Illness Crisis Loss. 1999;7(2):172-82. DOI: https://doi.org/10.1177/105413739900700205

Herdman T, Kamitsuru SL, Lopes C. NANDA International Nursing Diagnoses Definitions and Classification 2021-2023. United States: Thieme Medical Publishers Inc.; 2021. DOI: https://doi.org/10.1055/b000000516

Burke ML, Hainsworth MA, Eakes GG, Lindgren CL. Current knowledge and research on chronic sorrow: A foundation for inquiry. Death Studies. 1992;16(3):231-45. DOI: https://doi.org/10.1080/07481189208252572

Moustakas C. Phenomenological Research Methods. United States: Sage Publications; 1994. DOI: https://doi.org/10.4135/9781412995658

Creswell JW. Qualitative Inquiry and Research Design: Choosing among Five Approaches. 2nd ed. United States: Sage Publications; 2007.

Polit DF, Beck CT. Nursing Research Generating and Assessing Evidence for Nursing Practice. 9th ed.United States: Wolters Kluwer Health, Lippincott Williams & Wilkins; 2012.

DeBackere KJ, Hill KL, Kavanaugh KL. The parental experience of pregnancy after perinatal loss. J Obstet Gynecol Neonatal Nurs. 2008;37(5):525-37. https://doi.org/10.1111/j.1552-6909.2008.00275.x PMid:18811772 DOI: https://doi.org/10.1111/j.1552-6909.2008.00275.x

Sutan R, Miskam HM. Psychosocial impact of perinatal loss among Muslim women. BMC Womens Health; 2012;12:15. https://doi.org/10.1186/1472-6874-12-15 PMid:22708998 DOI: https://doi.org/10.1186/1472-6874-12-15

Üstündağ-Budak AM, Larkin M, Harris G, Blissett J. Mothers’ accounts of their stillbirth experiences and of their subsequent relationships with their living infant: An interpretative phenomenological analysis. BMC Pregnancy Childbirth. 2015;15:263. https://doi.org/10.1186/s12884-015-0700-3 PMid:26463456 DOI: https://doi.org/10.1186/s12884-015-0700-3

O’Leary J. Grief and its impact on prenatal attachment in the subsequent pregnancy. Arch Womens Ment Health. Arch Womens Ment Health. 2004;7(1):7-18. https://doi.org/10.1007/s00737-003-0037-1 PMid:14963728 DOI: https://doi.org/10.1007/s00737-003-0037-1

Bettle AM, Latimer MA. Maternal coping and adaptation: A case study examination of chronic sorrow in caring for an adolescent with a progressive neurodegenerative disease. Can J Neurosci Nurs. 2009;31(4):15-21. PMid:20085116

Siswayanti N. Javanese ethical values in Tafsir Al-Huda. Analisa. 2013;20:207. DOI: https://doi.org/10.18784/analisa.v20i2.177

Subandi S. A psychological concept. J Psikol UGM. 2011;38(2):7654.

Yuniarti KW. The magical strength of nrimo and gotong-royong a quick response report following the May 27, 2006 Earthquake in Yogyakarta. Anima Indones Psychol J. 2009;24(3):201-6.

Sudirman SA, Suud FM, Rouzi KS, Sari DP. Forgiveness and hapiness through resilience. Al-Qalb J Psikol Islam. 2019;10(2):113-32. DOI: https://doi.org/10.15548/alqalb.v10i2.955

Allahdadian M, Irajpour A. The role of religious beliefs in pregnancy loss. J Educ Health Promot. 2015;4:99. https://doi.org/10.4103/2277-9531.171813 PMid:27462641

Wright PM. Perinatal loss and spirituality. Illness Crisis Loss 2017;28(2):99-118. DOI: https://doi.org/10.1177/1054137317698660

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Published

2022-01-03

How to Cite

1.
Samutri E, Widyawati W, Nisman WA, Gittelsohn J, Hadi H, Lewis EC, Endriyani L, Indrayana S, Afita AMR. The Experience of Chronic Sorrow among Indonesian Mothers Who have Suffered Recent Perinatal Loss. Open Access Maced J Med Sci [Internet]. 2022 Jan. 3 [cited 2024 Nov. 21];10(T8):114-21. Available from: https://oamjms.eu/index.php/mjms/article/view/9502