Determinants Analysis Factors Affecting the Capability of Family Healthcare of Chronic Kidney Disease with Hemodialysis

Virgianty Nur Faridah; Nursalam Nursalam; Ninuk Dian Kurniawati; Isni Lailatul Maghfiroh

doi:10.3889/oamjms.2023.9181

Authors

Virgianty Nur Faridah Doctoral student, Faculty of Nursing, Universitas Airlangga, Surabaya, Indonesia; Department of Medical Surgical Nursing, Faculty of Health Science, Universitas Muhammadiyah Lamongan, Lamongan, Indonesia https://orcid.org/0000-0002-2415-822X
Nursalam Nursalam Department of Medical Surgical Nursing, Faculty of Nursing, Universitas Airlangga, Surabaya, Indonesia
Ninuk Dian Kurniawati Department of Medical Surgical Nursing, Faculty of Nursing, Universitas Airlangga, Surabaya, Indonesia https://orcid.org/0000-0002-9457-3445
Isni Lailatul Maghfiroh Department of Medical Surgical Nursing

DOI:

https://doi.org/10.3889/oamjms.2023.9181

Keywords:

Family, Patient, Social Support, Health Service, Family Healthcare Ability, Chronic Kidney Disease, Hemodialysis

Abstract

BACKGROUND: Family members have an important role in the healthcare of other family members, especially for hemodialysis patients.

AIM: The purpose of this study is to analyze the determinants of factors that affect the ability of families to care for patients of chronic kidney disease (CKD) with hemodialysis.

METHODS: This research was used descriptive-analytical with a cross-sectional approach. The utilized population was families of CKD patients with hemodialysis in three hospitals in East Java, Indonesia. Through multistage random sampling, 155 families were obtained. The research data were taken with family questionnaire, patient questionnaire, social support questionnaire, and health-care services questionnaire. After tabulating the data, the hypothesis was tested with Structural Equation Modeling-Partial Least Squares with a significance level of ≤ 0.05 or the value of t-statistic ≥t-table (1.96).

RESULTS: The results showed that the family factors (t = 2.527) with six indicators (Age, education, family structure and function, motivation, experience and skill, and knowledge) had a strong effect on family health-care ability, with p = 0.012. The patient factors (t = 2.355) with four indicators (physical, psychological condition, lenght of care, and disease severity) had a strong effect on family health-care ability, with p = 0.019. The social support factor (t = 8.051) with three indicators (family, peer, and health-care support) had a strongest effect on family health-care ability, with p = 0.000. The health service factor (t = 2.820) had a strong effect on family health-care ability, with p = 0.005.

CONCLUSION: Based on those results, it becomes necessary to increase the knowledge of family members. Besides that, improve the physical and psychological condition of patients by involving support from peer groups and health workers can be done. The quality of health services must also improved so the family’s health-care ability of CKD patients with hemodialysis can increase.

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References

Gilbertson EL, Krishnasamy R, Foote C, Kennard AL, Jardine MJ, Gray NA. Burden of care and quality of life among caregivers for adults receiving maintenance dialysis: A systematic review. Am J Kidney Dis. 2019;73(3):332-43. https://doi.org/10.1053/j.ajkd.2018.09.006 PMid:30454885 DOI: https://doi.org/10.1053/j.ajkd.2018.09.006

Maddalena V, O’Shea F, Barrett B. An exploration of palliative care needs of people with end-stage renal disease on dialysis: Family caregiver’s perspectives. J Palliat Care. 2018;33(1):19-25. https://doi.org/10.1177/0825859717747340 PMid:29281947 DOI: https://doi.org/10.1177/0825859717747340

Rabiei L, Eslami AA, Abedi H, Masoudi R, Sharifirad GR. Caring in an atmosphere of uncertainty: Perspectives and experiences of caregivers of peoples undergoing haemodialysis in Iran. Scand J Caring Sci. 2016;30(3):594-601. https://doi.org/10.1111/scs.12283 PMid:26582126 DOI: https://doi.org/10.1111/scs.12283

Jafari H, Ebrahimi A, Aghaei A, Khatony A. The relationship between care burden and quality of life in caregivers of hemodialysis patients. BMC Nephrol. 2018;19(1):321. https://doi.org/10.1186/s12882-018-1120-1 PMid:30419837 DOI: https://doi.org/10.1186/s12882-018-1120-1

Hoang VL, Green T, Bonner A. Informal caregivers’ experiences of caring for people receiving dialysis: A mixed-methods systematic review. J Ren Care. 2018;44(2):82-95. https://doi.org/10.1111/jorc.12235 PMid:29357407 DOI: https://doi.org/10.1111/jorc.12235

Axelsson L, Alvariza A, Lindberg J, Öhlén J, Håkanson C, Reimertz H, et al. Unmet palliative care needs among patients with end-stage kidney disease: A national registry study about the last week of life. J Pain Symptom Manage. 2018;55(2):236-44. https://doi.org/10.1016/j.jpainsymman.2017.09.015 PMid:28941964 DOI: https://doi.org/10.1016/j.jpainsymman.2017.09.015

Rak A, Raina R, Suh TT, Krishnappa V, Darusz J, Sidoti CW, et al. Palliative care for patients with end-stage renal disease: Approach to treatment that aims to improve quality of life and relieve suffering for patients (and families) with chronic illnesses. Clin Kidney J. 2017;10(1):68-73. https://doi.org/10.1093/ckj/sfw105 PMid:28638606 DOI: https://doi.org/10.1093/ckj/sfw105

Friedman MM. Buku Ajar : Keperawatan Keluarga: Riset, Teori, Praktik. 5th ed. Jakarta: EGC; 2010.

Friedman MM, Bowden VR, Jones E. Family Nursing: Research, Theory and Practice. 5th ed. New Jersey: Prentice Hall; 2003. p. 714.

Lam DY, Scherer JS, Brown M, Grubbs V, Schell JO. A conceptual framework of palliative care across the continuum of advanced kidney disease. Clin J Am Soc Nephrol. 2019;14(4):635-41. https://doi.org/10.2215/CJN.09330818 PMid:30728167 DOI: https://doi.org/10.2215/CJN.09330818

Riegel B, Jaarsma T, Lee CS, Strömberg A. Integrating symptoms into the middle-range theory of self-care of chronic illness. ANS Adv Nurs Sci. 2019;42(3):206-15. https://doi.org/10.1097/ANS.0000000000000237 PMid:30475237 DOI: https://doi.org/10.1097/ANS.0000000000000237

Nursalam. Metodologi Penelitian Ilmu Keperawatan: Pendekatan Praktis. 5th ed. Jakarta: Salemba Medika; 2020.

De Pasquale N, Cabacungan A, Ephraim PL, Lewis-Boyér L, Powe NR, Boulware LE. Family members’ experiences with dialysis and kidney transplantation. Kidney Med. 2019;1(4):171-9. https://doi.org/10.1016/j.xkme.2019.06.001 PMid:32734197 DOI: https://doi.org/10.1016/j.xkme.2019.06.001

Eirini G, Georgia G. Caregivers of Patients on Haemodialysis. Caregiving and Home Care. IntechOpen; 2017. Available from: DOI: https://doi.org/10.5772/intechopen.72400

https://www.intechopen.com/chapters/58200 [Last accessed on 2022 Mar 01].

Allender JA, Spradley BW. Community Health Nursing: Concepts and Practice. 5th ed. Philadelhia, PA: Lippincott; 2005. 16. Chilton S. A Textbook of Community Nursing. London: Hodder Arnold; 2012. p. 303.

Taufik G, Sari IP, Yuni I. Phenomenological study of adherence to hemodialysis therapy in patients with chronic kidney failure at El Syifa Hospital (Fresenius Kidney Care) Kuningan, West Java. J Farmaku Farm Muhammadiyah Kuningan. 2021;6(2):55-61. https://doi.org/10.55093/jurnalfarmaku.v6i2.276 DOI: https://doi.org/10.55093/jurnalfarmaku.v6i2.276

Efe D, Kocaöz S. Adherence to diet and fluid restriction of individuals on hemodialysis treatment and affecting factors in Turkey. Jpn J Nurs Sci. 2015;12(2):113-23. https://doi.org/10.1111/jjns.12055 PMid:25123654 DOI: https://doi.org/10.1111/jjns.12055

Abrillian. Seminar Dokter-Portal Event Kedokteran Indonesia. Seminardokter.id. Brillian Technomedia. Available from: https://www.seminardokter.id/events/details/sd31013- workshop--symposium-bali-update-in-nephrology-scientific- communication-bun-sc-dan-bali-dialy [Last accessed on 2022 Mar 01].

Armiyati Y, Wuryanto E, Sukraeny N. Management of psychosociospiritual problems in chronic kidney disease (CKD) patients with hemodialysis in the city of Semarang. Pros Semin Nas Int. 2016;1(1):401.

Patricia AP. Buku Ajar : Fundamental Keperawatan Konsep, Proses, dan Praktik. 4th ed., Vol. 1., Ch. 1. Jakarta: EGC; 2005.

Taylor SG, Renpenning K. Self-Care Science, Nursing Theory, and Evidence-Based Practice. New York: Springer Publishing; 2011. p. 1.

Rabiei L, Eslami AA, Abbasi M, Afzali SM, Hosseini SM, Masoudi R. Evaluating the effect of family-centered intervention program on care burden and self-efficacy of hemodialysis patient caregivers based on social cognitive theory: A randomized clinical trial study. Korean J Fam Med. 2020;41(2):84-90. https://doi.org/10.4082/kjfm.18.0079 PMid:31958941 DOI: https://doi.org/10.4082/kjfm.18.0079

Notoadmodjo S. Romosi Kesehatan dan Perilaku Kesehatan (Health Promotion And Health Behavior). Jakarta: Rineka Cipta; 2014.

Chao M, Wade C, Kronenberg F, Kalmuss D, Cushman L. Women’s reasons for complementary and alternative medicine use: Racial/ethnic differences. J Altern Complement Med. 2006;12(8):719-22. https://doi.org/10.1089/acm.2006.12.719 PMid:17034277 DOI: https://doi.org/10.1089/acm.2006.12.719

Chen J, Khalil RA. Chapter four-matrix metalloproteinases in normal pregnancy and Preeclampsia. Prog Mol Biol Transl Sci. 2017;148:87-165. https://doi.org/10.1016/bs.pmbts.2017.04.001 DOI: https://doi.org/10.1016/bs.pmbts.2017.04.001